How's Aina in 2020

It's been almost 10 years since Aina came into our life.. How much time has flies.. Currently she have 3 wonderful sisters by her side..

She is now schooling at special school called Pusat Pendidikan Khas Integrasi (PPKI) at Sekolah Kebangsaan Taman Seri Gombak, a government school which accommodate kids with special needs... Currently the PPKI holds around 90+ students ranging various special needs categories and Aina is the only one with Spina Bifida..

She currently in standard 2 for the second year.. Aina is on her wheelchair when she's in school...She can read in Bahasa Malaysia and English and able to count all the way to hundred..

Sorry...

hello everybody...sorry for not updating this blog for a long time..i think it has been about 10 months or something..considering that my last post was in January...

My apologies to all reader who keep on opening this blog to read about Aina...sorry for disappoint u all for there is not update recently..however i would like to say thank you for all follower who keep on waiting,,thank you so much and i really appreciate it..

I was being busy with work, family, myself and etc..by God's will insyaAllah.. I will continue soon in future.. And F. Y. I... Aina is well... And have grown up.. She is 1 year and almost 9 months..

PV Shunt Insertion..

I did mention that Aina had her 2nd surgery on 30th December 2010..and it was PV Shunt insertion surgery..

Dated 30th December 2010.

Why do she need for this procedure? 

It is because of her hydrocephalus and by inserting a VP Shunt, the increased pressure inside her skull due to excess CSF fluid  on her brain (hydrocephalus) can be relieved.

The VP shunt is placed at the right side of Aina's head..just behind the ears..What they do?? OK...to make it simple...VP Shunt insertion is to insert a valve (fluid pump) underneath her skin at the back of her right ear...this valve is connected to the brain's ventricle thru a small thin tube. Then from the valve...there is another thin tube which runs from the valve to her belly... This thin tube to her belly was also placed underneath her skin from the back to her right ear, to her neck and to her belly thru her chest...

How it is work?? OK...when there are extra pressure builds up around her brain...the valve ( fluid pump ) will open and the excess fluids will drains out of it into her belly where the fluid will be disgusted.

And this VP Shunt is permanent...meaning she will have to wear it all her life..If the shunt is faulty or damaged..then another surgery has to be performed to replaced it..

So far..for Aina's case..the surgery is a success...alhamdulillah...her head measurement deceased and physically me & wifey..notice that her head is becoming almost normal size..alhamdulillah...

Date : 13th January 2011

And alhamdulillah...her VP Shunt Surgery wound also healed very well...and so far...we did not notice anything that she uncomfortable about the VP Shunt...Alhamdulillah...

Update On Previous Posts..

It has been awhile since my last update on this blog..Been a little bit busy managing a new life...between work...family..and being a first time father...All i can say is that...it is challenging..and fun !!

Date : 12th January 2011

And Aina is getting healthier and healing well..Alhamdulillah..and she also getting chubbier too...hehehehehhe

I have manage to update some of the previous post with some details and info ( including illustrations ) about Aina's hydrocephalus and myelomeningocele...just for share knowledge with all of you out there...who knows it might help others and especially those first time parents who experience the same experience with mine..lets share them and give the best life we can for our children..A special gift from God which we must cherish, accept and do our best as parents...

Below is the link to those previous posts which i have updated...

1) http://mrdaddypoko.blogspot.com/2010/12/what-is-spina-bifida.html

2) http://mrdaddypoko.blogspot.com/2010/12/what-is-hydrocephalus.html

3) http://mrdaddypoko.blogspot.com/2010/12/3rd-day-suspense.html

4) http://mrdaddypoko.blogspot.com/2011/01/week-has-passed.html

Will update with newer post later....

Aina Coming Home...

Well..Wednesday evening..Aina was discharge...The news received during the afternoon but Aina only can be discharge in the evening cause the doctor is waiting for the NICU specialist to give the final green light..plus the doctors have to prepare summary report..set Aina's appointment..prepare some papers...

Anyway...at almost 5 pm...wifey called..Final word have been given !! AINA CAN BE DISCHARGE!!!CONFIRMED!!Woot!!woot!!...Alhamdulillah...feel so damn happy..nothing cant be described how i felt..only God knows...macam nak lompat lompat pun ada....macam nak declare esok cuti satu malaysia pun ada..

Date : 11th January 2011

Reached HUKM around 8 pm with myself having a minor headache (Aina punya pasal no problem punyo..)...Went to NICU..took the discharge paper..pay Aina's bill at the Emergency Counter...took Aina's 1 months of medicine then go up to NICU again...

In NICU...sign up some release papers...and the nurse explained Aina's next appointment..man...she already has 3 appointments..or is it 4 appointments??..haiyark..have to recheck again..i can only remember 1 in February and 2 in March..

Date : 11th January 2011

Around 9 pm something we leave HUKM...drop by at in law's house...for Aina to meet her Nenek, Mak Ngah and her nephews and picked up wifey's stuff...she couldn't met Atuk as Atuk was at surau..however..Aina's was sound asleep (like always) the whole time there...

Then straight to Gombak..at Granny's house..where Aina will be stay at the moment.. reached there around 10 PM plus...

and now....lets the real adventure begins....

YAY!!! Aina Might Be Coming Home....

Yippeee!!!!....Received a good news this afternoon...

Aina might be discharge by today's evening or night....

Neuro specialist = Green Light !

Nephrology = Green Light!

NICU Doctors = Green Light!

NICU Specialist = ????

Discharge = YES !!!

AWESOME!!!

Now only wait for the doctors in the NICU to have a daily ward round routine...and to inspect Aina before a final green light is given...

A Positive Development...Alhamdulillah...

It has been 17 days now...Aina still in the NICU...but her conditions seems to be improved very well..alhamdulillah...

Lets recap her pic from 3st Jan 2011 until 9th Jan 2011..The last pic of her in this post wiould be her latest one...

This pic was taken on the 3rd January 2011. Her body still swollen due to VP Shunt Surgery.

Dated : 4th January 2011...Her hair...so thick..like ibu...sleeping like a beauty..

 Currently her vitals are good..no more swollen here and there except on her leg with minor swollen..

Dated : 5th January 2011 ...Hohohohohoho..she have a big round eyes..

Dated 5th January 2011...

Her surgery wound heals well even not 100% yet except on her back which the stitches still have not come off..

Dated 9th January 2011

Alhamdulillah..She looks so clean and looks healthy...Thanks for the staff in NICU for taking a good care of her while daddy poko and ibu not with her...

Dated 9th January 2011

She's now is tube & wired free except for the wire which detect her body temperature...

Dated 9th January 2011...Aint she's cute...

No more res tube feeding..she fed on bottles and susu badan..She also needs daily workout for her legs...

"Emmm...biler la Aina boleh balik nih...."